News
Aniridia-Net webinar. Managing aniridia: dos and don’ts from infancy to adulthood, Monday 21st June 2021, 18.00 CEST
A special webinar for Aniridia Day on Monday 21st June 2021, at 18.00 CEST! The speakers, Prof. Dominique Brémond Gignac (University Necker-Enfants malades Hospital, Paris, France) and Prof. Barbara Käsmann-Kellner (University of Saarland, Homburg/Saar, Germany), are...
AniridiaX: Italian superheroes with black eyes and a coloured heart
The association Aniridia Italiana APS has organised, with the collaboration of the “Omero” (Homerus) National Tactile Museum in Ancona (Marche, Italy), the exhibition: "AniridiaX: superheroes with black eyes and a coloured heart" on 19th and 20th June 2021 to...
Webinar “Breaking barriers with aniridia”, Sunday 20th June 2021, 16.30 CEST
How many barriers have you encountered in your life? At school, from childhood to the university, in finding a job and then at your workplace, in your leisure time, or when you travel, meet new people, make friends...? An important part of a visually impaired person's...
Aniridia Day 2021 is coming!!!
This year again the aniridia community will not give up celebrating the International Aniridia Day on June 21st. In the past year we have learned how to cope with all the restrictions we are still experiencing because of the pandemics, we have found new ways of...
Report on Aniridia-Net webinar: Eyes open on stem cells dynamics, signature and niche by Ruby Shalom Feuerstein and Daniel Aberdam
Hosted by Daniel Aberdam (Head of Research in INSERM – Paris), on Wednesday, May 26th 2021 Aniridia Europe in association with Aniridia-NET held the webinar "Eyes open on stem cells: dynamics, signatures and niche". The special guest of this digital event was Ruby...
Aniridia Europe and Aniridia-Net working together to promote knowledge on Aniridia and collaboration among scientists and with patients
Aniridia Europe is glad to announce a great new partnership with Aniridia-Net in order to promote knowledge on Aniridia and updates on its treatments. Starting from May 26th at 6:00 PM CEST, in fact, Aniridia Europe and Aniridia-net will implement a series of monthly...
Report on the webinar “Digital rebels against distance”
In Italy, a group of young adults with aniridia decided to do something more for their friends. In June 2020 they built a team composed by 4 young ladies and 2 young men who began to publish posts on social networks, creating funny digital events, promoting and...
Webinar: Digital rebels against distance, Saturday 24th April 2021, 11.00 a.m. CEST
Since Covid-19 spread out at global level, governments and institutions have set social distancing measures in order to contain the sanitary emergency. Starting from that moment a lot of patients around the world have lost the opportunity to meet face-to-face and to...
Report on the webinar “News from the frontier”, 27th February 2021
For the Rare Disease Week 2021 Aniridia Europe organized the webinar “News from the frontier” about the Aniridia-Net COST Action and the latest news about aniridia treatment and research. The webinar started with a welcome speech by Ivana Kildsgaard, chairperson of...
News from the frontier: a dialogue on Aniridia-Net COST Action to improve aniridia clinical management and promote innovative research, Saturday 27th February 2021, 11 a.m. CET
For the Rare Disease Week this year we have organised a webinar about the Aniridia-Net COST Action and the latest news in aniridia treatment and research. Our keynote speakers are dr. Neil Lagali (University of Linköping, Sweden) and dr. Claus Cursiefen (University of...