News
Canary Island holiday raffle, fundraising for the European Aniridia Conference
Help us to finance the 6th European Aniridia Conference by entering a raffle to win 7 days / 6 nights in Fuerteventura with all-inclusive at Hotel Taimar – accessible and inclusive hotel. Do you know the Canary Islands, its incredible…
Overview of ANA Scientific Symposium: PAX6, aniridia, and beyond is now available
We are pleased to announce that ANA (Aniridia North America) has published on its website the overview of themes of the 2021 ANA Symposium: PAX6, Aniridia, and Beyond. The meeting was held on November 4-6 on the campus of the University of Virginia and was attended by...
The 6th European Aniridia Conference announced!
The Spanish Aniridia Association, with the collaboration of Aniridia Europe, Cost Action and Vissum-Miranza Ophthalmology Clinic, invites you to attend the 6th European Aniridia Conference, that will take place on June 3-5th 2022 in San Juan de Alicante, Spain. A...
News from Aniridia Europe, January 2022
Dear friends, this year has been very challenging for all the world, and even more challenging for people, like us, that face difficulties every day in their lives. But one lesson we have learned during these years: together we are stronger, together we can better...
Updates about the AAK-INSIGHT project
Professor Daniel Aberdam (INSERM, Paris, France) has kindly sent the figure you find below to summarize the effort of his team together with other groups of scientists to identify and validate small compounds that could become novel therapeutic tools to treat...
Aniridia Europe among the patient representatives in EU-EYE CLEO
The EU-EYE (European Alliance for Vision Research and Ophthalmology) has established an organ composed by patient representatives, provisionally called CLEO: Council of Lived Experience in Ophthalmology. The main goals of this Alliance are: - to gather...
WAGR Spectrum: new evidence-based recommendations for medical care
We are pleased to report some very important news about WAGR. From France: in October 2021, the first national guidelines in France and in Europe on Wagr spectrum developed by GÉNIRIS and the OPHTARA aniridia reference center of the Necker-Enfants Malades hospital, in...
News from Russia
In July 2021, the Inter-regional support center for patients with aniridia “Iris” became the winner of the Presidential Grants competition. Through the financial support of the grant, the organization was able to print the following brochures and guides for...
A prospective study on living with aniridia planned in Norway in 2022
A new research project on health-related quality of life in adults with aniridia in Norway is in the starting phase, in close collaboration with Aniridia Norway and a research team at Oslo University Hospital, composed by Solrun Sigurdardottir, PhD, Charlotte von der...
News from Spain
We are happy to report the news we have received from the Asociación Española de Aniridia related to the period June-December 2021. The “Mes a Mes” (month by month) programme. The Spanish Aniridia Association has broadcasted live online webinars on different topics...