News
Aniridia’s Education Corner: from Italy comes the first eLearning area on Aniridia in the world
2022 was a year of great importance for the Aniridia Italy association. First of all, in June, finally and after four years, a national meeting was held in person. In fact, the 2020 meeting was held completely digitally and in order not to lose the habit, this year's...
News from Bulgaria
The Bulgarian aniridia association was founded ten years ago. During the Aniridia Europe Community Meeting in Alicante, on 3rd of June 2022, its President, Elena Tsoneva, described its activities, plans for future and challenges, that you can read here.
A new aniridia association founded in Romania
During the Aniridia Europe Community Meeting in Alicante, on 3rd of June 2022, the representative Oana Simerea introduced the recently founded Romanian aniridia association. You can find her presentation here.
Minutes from the General Assembly, July 13th, 2022
General Assembly minutes
News from Aniridia Sweden
A report by Neven Milivojevic, representative of Aniridia Sverige. In 2021 the Swedish aniridia association, Aniridia Sweden, had 66 members. The association is a member of the Swedish Association of the Visually Impaired as well as of the Swedish National Association...
An introduction to the German Aniridia association
We gladly publish the speech of Denice Toews, president of AWS Aniridie-WAGR e.V., at the Aniridia Europe Community Meeting in Alicante, on 3rd of June 2022. My name is Denice and I’m 46 years old. I am a mother of 4 wonderful children. One of them has a very rare...
6th European Aniridia Conference: session on WAGR spectrum
Aniridia Europe is pleased to publish the lay summary of the session on WAGR spectrum held at the 6th European Aniridia Conference, on 3, 4 & 5 June 2022, in San Juan de Alicante, Spain. The summary was prepared by Kelly Trout, chaiperson of the International Wagr...
Nominations open for directors of Aniridia Europe
The Nominating Committee informs that: We are recruiting volunteers to lead and carry out our activities. Would you like to be involved? Here are details of how you can be. Between 4 and 9 people are needed to form the Aniridia Europe Board of Directors. Together the...
Webinar: Regulatory Framework on Orphan Medicinal Products for Rare Diseases, May 20th, 2022, at 13.00 CEST
Aniridia-Net and Aniridia Europe are happy to announce this new webinar which will take place on May 20th at 1PM CEST and will talk about orphan medicinal products, recommended to an audience of professionals working in the field of aniridia and the other rare...
Aniridia Europe Webinar: The digital therapeutics value
On April 26th 2022, at 18.00 CEST, Aniridia Europe will present a live webinar hosted by Galina Gening with the presence of Kasperi Kankare to talk about the the measurement of intraocular pressure in patients with congenital aniridia at home. A few years ago, a...