News
News from Aniridia Europe
Dear friends, one year ago I closed my greeting message on behalf of the newly elected Board with these words: "Let’s walk together with confidence towards our common goals". In the articles below you will be able to see how the national member associations have...
News from Italy: 20 years lived as ONE-Family
In 2003 a group of Italian families from Rome, Venice , Udine and Lecco decided to meet up in order to talk about their life with Aniridia. From that lunch together, everything changed not only for them, but also for the future of Aniridia’s patients in Italy and...
The 20th anniversary of Aniridia Norway at Oscarsborg Fortress Hotel
Imagine that something that started as a call for community quickly grew into a full-fledged association. And look at all that we have achieved together with others, both in Norway and around the world! In 2003, Hilde Ravnanger Hansen started the association Aniridia...
News from Spain: an active presence for the aniridia community
The Annual Meeting On 22 April, Spanish families and young people living with aniridia met recently for the 2023 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community. Attendees...
News from Ukraine
We have received a letter by Mikola Snurnikov, president of the Ukrainian aniridia association, describing the current situation in his country. It is very painful to read that aniridia patients cannot get regular examinations and access to care and that their life...
A new article on aniridia and glaucoma published in Bulgaria
Aniridia Bulgaria is pleased to share the attached file, which is a publication of the National Academy Glaucoma Foundation, Sofia, Bulgaria, 2023; the journal is "Bulgarian Glaucoma Forum", 2023, Volume 12, Issue 1. Associate Professor Anna Popova published the...
Doctors and families together on Aniridia Day in Russia
The Interregional Support center for patients with Aniridia “Iris” in the last half year has continued to support patients with aniridia providing them with free rehabilitation tools, glasses and sunglasses, as well as free examinations at the Center of Rare Eye...
Restore Vision: a European consortium developing treatments for rare eye diseases
Monday June 26, 2023: A consortium of 10 European academic, clinical and enterprise partners led by University of Galway has been formed in a special project to test new treatments for rare eye diseases. In Europe, approximately 30 million people suffer from blindness...
Aniridia Day 2023 is coming!
In 2023 again, as every year on June 21st, the international aniridia community will celebrate the Aniridia Day during the summer solstice. It will be an opportunity to meet, to share experiences, to have fun together, to reflect on what we have achieved so far and...
IWSA hosts WAGR Weekend Europe 2023
WAGR Weekend Europe 2023, organized by the International WAGR Syndrome Association, will take place from July 21 to July 23. Families from Europe and beyond will meet for this 3-day event in Overpelt, Belgium. WAGR Weekend is an opportunity for families to learn more...