News
Meeting of the the Russian Scientific Committee of the Interregional Support Center for patients with aniridia “Iris”, August 2018
The Russian Scientific Committee met in August 2018 and decided to write Clinical guidelines on congenital aniridia for the Russian Federation, as well as to start a general Register of patients with congenital aniridia in Russia. More information at:...
The 4th European Conference on Aniridia: a further step in the right direction
It was a week end full of events, meetings and opportunities to share expertise and experiences the one we spent in Paris from the 24th to the 26th of August 2018. The 4th European Conference on Aniridia, gathering more than 70 professionals and more than 130...
Aniridia Europe and Aniridia Spain at WOC
Aniridia Europe and the Spanish Aniridia Association participated at the World Ophthlamology Congress WOC in Barcelona, June16-19th 2018. Both organisations shared a booth, at the exhibition room, and had the possibility to talk and to provide information about...
Take part in international Aniridia Day on 21 June 2018!
After last year’s great success, the International Aniridia Day Committee is organizing more activities in 2018. You are invited, for example, to propose and participate in webinars on June 21 with the objective to promote a better understanding of aniridia, to...
A €2.5 million project on aniridia funded at the University of Saarland, in Germany
Aniridia Europe is pleased to share the news sent by Prof. Barbara Käsmann-Kellner of the University of Saarland, in Germany. The Schwiete Stiftung consortium, a charity donor, will support the University of Saarland with 2.5 Million Euros. The Department of...
4th European Conference on Aniridia, Paris, August 25-26th 2018
Aniridia Europe, Gêniris and OPHTARA (Reference Center for Rare Diseases in Ophthalmology, Paris) are pleased to announce the upcoming 4th European Conference on Aniridia, which will be held on 25th-26th August 2018 in Paris, France. The programme for professionals...
The Spanish Aniridia Association signs an agreement with OftaRed
In the frame of the signed agreement between the Spanish Association of Aniridia and Oftared http://www.oftared.com/, an innovative proposal was launched: those students of Nursing, Optics and Medicine Schools in Valladolid University (Spain) may apply for an annual...
Prof. Bremond-Gignac´s statement on Rare Diseases Day
ShowYourRareShowYourCare #ShowYourRare As a physician-researcher who care patients affected by a rare disease, such as aniridia, rare pathologies of iris and cornea, we must make it more visible, well known and better understood. We must support associations and...
Clinical trial on KeraKlear Non-Penetrating Keratoprosthesis in Spain
A prospective, multicenter clinical trial designed to evaluate the safety and probable benefit of the keraklear non-penetrating keratoprosthesis in subjects with corneal opacity due to severe limbal stem cell deficiency associated with aniridia Summary: Sponsor and...
Aniridie België – symposium 2018
Tijdstip: 24 februari 2018 van 9.30 u tot 13.20 u Locatie: UZ Gent - bibliotheek Jules François - dienst oogziekten – UZ Gent Voor een routebeschrijving naar het UZ Gent: http://www.uzgent.be/nl/overuz/Bereikbaarheid/naar-de-campus/Paginas/default.aspx Programma:...