News
French guidelines for congenital aniridia published, April 2019
The French National Protocol of diagnosis and care of aniridia (PNDS - protocole national de diagnostic et de soins) is now available at: https://www.has-sante.fr/portail/jcms/c_2963463/fr/aniridieIt has been developed by OPHTARA - Centre of Reference for Rare Eye...
Aniridia Centre opened in Moscow, Russia, February 2019
A centre of expertise is now available for aniridia patients in Moscow, Russia, at the National Medical Research Center for Children's Health (an autonomous institution of the Ministry of Health of the Russian Federation). In this centre, patients with aniridia, both...
Symposium on rare eye diseases and on aniridia, Venice (Italy), February 21th, 2019
A symposium focused on the rare diseases of the ocular surface and on aniridia in particular was held in Mestre (Venice), in the framework of the 23rd National Congress of the Italian Society of Cornea Transplant and Ocular Surface (S.I.T.R.A.C.). The symposium is...
Aniridia Europe is a partner in two European projects
Erasmus+ project Looking out for a school for all: early educational inclusion for students with low vision The project is focused on early educational inclusion for visually impaired children. It involves 6 partners from 3 different European countries. It is led by...
GENIRIS and AFM TELETHON support research on aniridia
In 2018 and 2019, GENIRIS and AFM TELETHON have decided to support with 85 000 euros Pr Aberdam project on aniridia «MODELING OF HUMAN ANIRIDIA AND GENE THERAPY APPROACHES ». His group has designed an unique cellular model that recapitulates in vitro ARK. By the use...
Focus on young people and families at Aniridi Danmark’s Activity Day, November 2018
Aniridi Danmark is currently working on expanding their group of members, with a special focus on attracting young people and families with the condition. According to this goal, an Activity Day was organized in November 2018, where the activities were adapted to this...
Aniridia in the Bulgarian Ophthalmology Conference, November 23-25th, 2018
The conference "Novelties in Ophthalmology 2018" was held in Riu Pravets, Bulgaria, on November 23-25th,2018. The main focus of this scientific professional forum was on "Cataracts". The topic was addressed in an innovative light, in all its various aspects:...
Aniridia Connection! The 9th National meeting of the Italian Aniridia association, October 12th-14th, 2018
Padua, North-East of Italy. An early autumn weekend that seemed rather late summer, for the mild temperature and the blue brightness of the sky. Under the domes and the steeples of the Basilica di Sant’Antonio, Aniridia Italiana held its 9th national meeting, attended...
94th Congress of the Spanish Ophthalmology Society SEO, Granada 26-29 September 2018
The Spanish Association of Aniridia AEA attended this SEO Congress where they had the privilege of learning from the experts and professionals who gathered there from September 26 to 29th 2018 in Granada. It was a unique opportunity for AEA, to disseminate information...
Minutes from the General Assembly, August 24th 2018
Aniridia EuropeGeneral AssemblyAugust 24th, 2018Paris, France Minutes Opening of the meeting. The meeting was open at 14.00 CET and participants were invited to introduce themselves to the Assembly. Approval of the agenda. The agenda was approved. Election of the...