News
5th European Aniridia Conference 2021 – Info and call for ideas
The next European Aniridia Conference will be held online and perhaps in London too, 30 July to 1 August 2021. Make a note in your calendar now and pass this invitation on to anyone who might be interested The event is aimed at professionals, patients and parents. As...
Aniridia Europe’s newsletter Jan 2021 published!
Please download it here.
Aniridia 2021 calendar available for download!
The COST Action Aniridia-Net comprises activities of advocacy and visibility, in order to create awareness about aniridia. One of these activities is the creation of a beautiful and touching 2021 calendar with the drawings created by aniridia children from all over...
Gene.Vision website about aniridia launched in UK
Medical information about aniridia, written for both patients and doctors, is now available on a new website by Moorfields Eye Hospital.
Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. It also lists current research and clinical trials in to treatments.
The brochure “Congenital Aniridia and Related Syndromes” published in Russia
The Russian Aniridia Centre has developed and published the brochure Congenital aniridia and related syndromes. Treatment and prevention. It includes data from geneticists, ophthalmologists, neurologists, neuro-psychologists, endocrinologists, nephrologists, vaccine specialists, special needs therapists about this condition, as well as recommendations about the treatment and prevention of aniridia associated disorders.
AAK-INSIGHT project on aniridia keratopathy granted by the European Union!
The application entitled ‘Aniridia – novel therapeutic tools to treat or prevent progressive corneal opacification (AAK-INSIGHT)’ was submitted by a consortium of researchers from several countries, led by Prof. Neil Lagali (Linköping University, Sweden) and Prof. Daniel Aberdam (CNRS, Biologie, Inserm-Technion, France).
Minutes from the General Assembly, July 15th, 2020
Aniridia EuropeGeneral AssemblyJuly 15th, 2020 p.m. CETTeleconference Minutes Opening of the meeting The meeting was opened at 7.00 p.m. CET and the President Mrs. Rosa Sánchez de Vega welcomed the participants. The participants briefly introduced themselves. Approval...
Aniridia Europe launches the 1st Aniridia Europe Research Award on Aniridia Day, June 21 2020
Today is our day, a day to raise awareness on our rare disorder. We have to raise our voices to go out of the darkness, to draw attention to the doctors and the policy makers. Aniridia Europe celebrates this day supporting aniridia research. This is why three aniridia...
Covid-19 pandemic: take care, stay safe!
Professor Dominique Brémond-Gignac, chair of Aniridia Europe Scientific Committee, has developed some recommendations based on the latest information on the COVID-19 pandemic. You can download them here.
Aniridia Day 2020 is coming soon!!!
In this year 2020, the pandemic is affecting all activities all around the world, but the aniridia community will not give up celebrating the International Aniridia Day on June 21st. There will be webinars in English and international campaigns that can be joined by...