3 January 2022 | AE, News & Events
Dear friends, this year has been very challenging for all the world, and even more challenging for people, like us, that face difficulties every day in their lives. But one lesson we have learned during these years: together we are stronger, together we can better...
3 January 2022 | AE, News & Events
Professor Daniel Aberdam (INSERM, Paris, France) has kindly sent the figure you find below to summarize the effort of his team together with other groups of scientists to identify and validate small compounds that could become novel therapeutic tools to treat...
3 January 2022 | AE, News & Events
The EU-EYE (European Alliance for Vision Research and Ophthalmology) has established an organ composed by patient representatives, provisionally called CLEO: Council of Lived Experience in Ophthalmology. The main goals of this Alliance are: – to gather...
3 January 2022 | News & Events
We are pleased to report some very important news about WAGR. From France: in October 2021, the first national guidelines in France and in Europe on Wagr spectrum developed by GÉNIRIS and the OPHTARA aniridia reference center of the Necker-Enfants Malades hospital, in...
3 January 2022 | National activities, News & Events
In July 2021, the Inter-regional support center for patients with aniridia “Iris” became the winner of the Presidential Grants competition. Through the financial support of the grant, the organization was able to print the following brochures and guides for...
3 January 2022 | National activities, News & Events
A new research project on health-related quality of life in adults with aniridia in Norway is in the starting phase, in close collaboration with Aniridia Norway and a research team at Oslo University Hospital, composed by Solrun Sigurdardottir, PhD, Charlotte von der...
