15 July 2023 | National activities, News & Events
Imagine that something that started as a call for community quickly grew into a full-fledged association. And look at all that we have achieved together with others, both in Norway and around the world! In 2003, Hilde Ravnanger Hansen started the association Aniridia...
15 July 2023 | National activities, News & Events
The Annual Meeting On 22 April, Spanish families and young people living with aniridia met recently for the 2023 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community. Attendees...
15 July 2023 | National activities, News & Events
We have received a letter by Mikola Snurnikov, president of the Ukrainian aniridia association, describing the current situation in his country. It is very painful to read that aniridia patients cannot get regular examinations and access to care and that their life...
15 July 2023 | National activities, News & Events
Aniridia Bulgaria is pleased to share the attached file, which is a publication of the National Academy Glaucoma Foundation, Sofia, Bulgaria, 2023; the journal is “Bulgarian Glaucoma Forum”, 2023, Volume 12, Issue 1. Associate Professor Anna Popova...
15 July 2023 | National activities, News & Events
The Interregional Support center for patients with Aniridia “Iris” in the last half year has continued to support patients with aniridia providing them with free rehabilitation tools, glasses and sunglasses, as well as free examinations at the Center of Rare Eye...
26 June 2023 | AE, News & Events
Monday June 26, 2023: A consortium of 10 European academic, clinical and enterprise partners led by University of Galway has been formed in a special project to test new treatments for rare eye diseases. In Europe, approximately 30 million people suffer from blindness...