25 May 2019 | National activities, News & Events
On 7 to 9 June 2019 a Nordic meeting for aniridia patients and experts will be held in Hurdal near Oslo, Norway. The meeting is a result of a collaboration between Aniridia associations in Sweden, Norway and Denmark as well as Linköpings University Hospital in Sweden....
10 April 2019 | National activities, News & Events
The French National Protocol of diagnosis and care of aniridia (PNDS – protocole national de diagnostic et de soins) is now available at: https://www.has-sante.fr/portail/jcms/c_2963463/fr/aniridieIt has been developed by OPHTARA – Centre of Reference for...
10 April 2019 | National activities, News & Events
A centre of expertise is now available for aniridia patients in Moscow, Russia, at the National Medical Research Center for Children’s Health (an autonomous institution of the Ministry of Health of the Russian Federation). In this centre, patients with aniridia,...
28 February 2019 | AE, National activities, News & Events
A symposium focused on the rare diseases of the ocular surface and on aniridia in particular was held in Mestre (Venice), in the framework of the 23rd National Congress of the Italian Society of Cornea Transplant and Ocular Surface (S.I.T.R.A.C.). The symposium is...
31 January 2019 | AE, News & Events
Erasmus+ project Looking out for a school for all: early educational inclusion for students with low vision The project is focused on early educational inclusion for visually impaired children. It involves 6 partners from 3 different European countries. It is led by...
20 December 2018 | National activities, News & Events
In 2018 and 2019, GENIRIS and AFM TELETHON have decided to support with 85 000 euros Pr Aberdam project on aniridia «MODELING OF HUMAN ANIRIDIA AND GENE THERAPY APPROACHES ». His group has designed an unique cellular model that recapitulates in vitro ARK. By the use...
