15 September 2021 | National activities, News & Events
On 1st August 2021, in the framework of the 5th European Aniridia Conference, Dr. Galina Gening* presented the results of a study on the impact of aniridia and WAGR syndrome on the psychological states of patients and their families. In the last decades aniridia and...
13 August 2021 | AE, National activities, News & Events
The 5th European Aniridia Conference this year had to face many challenges, that included the postponing from 2020 to 2021 and the complete transformation in an online event. In spite of all this, the conference displayed over the two days (31st July and 1st August...
13 August 2021 | National activities, News & Events
When you are dealing with a rare disease such as aniridia, there is a lot of information that you come across in a short time, and it is really difficult to understand what are the most important things that you need to know and to do, and in which priority order....
14 July 2021 | AE, News & Events
The first half of 2021 has been a very intense period for Aniridia Europe, full of worldwide contacts and exchanges and of activities. Our collaboration inside the Aniridia-Net COST Action allowed us to plan a series of scientific webinars that started in February,...
14 July 2021 | National activities, News & Events
Volunteers are the heart of an association (visit our page on this), and this is especially important when they are young because they can help their peers not to feel alone and to be hopeful, confident, supported and well informed. Young Aniridic Aaron has helped us...
14 July 2021 | National activities, News & Events
Due to the pandemic situation, The Spanish Aniridia Association has organised a series of monthly webinars “Mes a mes” in Spanish on its youtube channel, about different topics related to Aniridia, such as on glaucoma, on cataracts and ocular surface, social...
