10 April 2019 | National activities, News & Events
The French National Protocol of diagnosis and care of aniridia (PNDS – protocole national de diagnostic et de soins) is now available at: https://www.has-sante.fr/portail/jcms/c_2963463/fr/aniridieIt has been developed by OPHTARA – Centre of Reference for...
10 April 2019 | National activities, News & Events
A centre of expertise is now available for aniridia patients in Moscow, Russia, at the National Medical Research Center for Children’s Health (an autonomous institution of the Ministry of Health of the Russian Federation). In this centre, patients with aniridia,...
28 February 2019 | AE, National activities, News & Events
A symposium focused on the rare diseases of the ocular surface and on aniridia in particular was held in Mestre (Venice), in the framework of the 23rd National Congress of the Italian Society of Cornea Transplant and Ocular Surface (S.I.T.R.A.C.). The symposium is...
20 December 2018 | National activities, News & Events
In 2018 and 2019, GENIRIS and AFM TELETHON have decided to support with 85 000 euros Pr Aberdam project on aniridia «MODELING OF HUMAN ANIRIDIA AND GENE THERAPY APPROACHES ». His group has designed an unique cellular model that recapitulates in vitro ARK. By the use...
30 November 2018 | National activities, News & Events
Aniridi Danmark is currently working on expanding their group of members, with a special focus on attracting young people and families with the condition. According to this goal, an Activity Day was organized in November 2018, where the activities were adapted to this...
28 November 2018 | National activities, News & Events
The conference “Novelties in Ophthalmology 2018” was held in Riu Pravets, Bulgaria, on November 23-25th,2018. The main focus of this scientific professional forum was on “Cataracts”. The topic was addressed in an innovative light, in all its...
