22 January 2021 | AE, National activities, News & Events
The next European Aniridia Conference will be held online and perhaps in London too, 30 July to 1 August 2021. Make a note in your calendar now and pass this invitation on to anyone who might be interested The event is aimed at professionals, patients and parents. As...
6 January 2021 | National activities, News & Events
Medical information about aniridia, written for both patients and doctors, is now available on a new website by Moorfields Eye Hospital.
Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. It also lists current research and clinical trials in to treatments.
6 January 2021 | National activities, News & Events
The Russian Aniridia Centre has developed and published the brochure Congenital aniridia and related syndromes. Treatment and prevention. It includes data from geneticists, ophthalmologists, neurologists, neuro-psychologists, endocrinologists, nephrologists, vaccine specialists, special needs therapists about this condition, as well as recommendations about the treatment and prevention of aniridia associated disorders.
4 February 2020 | AE, National activities, News & Events
Download it!
25 May 2019 | National activities, News & Events
The next big event in the UK will be a chance to hear from, and ask questions to people interested in and affected by aniridia. There will be presentations about aniridia and related subjects from doctors and patients as well as the charity’s annual general...
25 May 2019 | National activities, News & Events
On 7 to 9 June 2019 a Nordic meeting for aniridia patients and experts will be held in Hurdal near Oslo, Norway. The meeting is a result of a collaboration between Aniridia associations in Sweden, Norway and Denmark as well as Linköpings University Hospital in Sweden....