18 December 2024 | National activities, News & Events
The Executive Board met regularly in online meetings. Active exchanges between our members in our Signal exchange group, in which 135 of our 170 members currently supported each other in a safe space away from social media. We have created an overview of which...
18 December 2024 | National activities, News & Events
Spanish Aniridia Association annual meetingOn 22 April, Spanish families and young people living with aniridia met for the 2024 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community....
18 December 2024 | National activities, News & Events
In July, the association “AniridijaLT” organized its highly anticipated annual members’ and families’ meeting, which took place in the picturesque setting in a deer park. This event brought together members of the association, their families, and supporters for a day...
18 December 2024 | National activities, News & Events
At the end of 2023, a new French guideline (Protocole National de Diagnostic et de Soins) was published for the Axenfeld Rieger Syndrome. It can be found here.In 2023 and 2024, as well as in the previous years, Gêniris attended many congresses (the congress of the...
18 December 2024 | National activities, News & Events
The Nordic Aniridia Meeting 2024 was held in Stockholm from May 31 to June 2, 2024, gathering 27 enthusiastic participants from Sweden, Norway, and Finland. The meeting ran parallel to the European Aniridia Conference (EAC) 2024 and provided a great opportunity for...
18 December 2024 | National activities, News & Events
From October 1st to October 30th, as part of the project “Help me see the world!”, 7 expeditions were made by a pool of doctors (an ophthalmologist, a neurologist, a geneticist, a low vision specialist, and a psychologist) in different regions of Russia...
