Elected at General Assembly on 8th July 2024 for the period of 2024-2026.
Board of Directors
President
Barbara Poli
email: barbara.poli@aniridia.eu
phone: +39 348 722 43 99
Vice-President
Denice Toews
email: denice.toews@aniridia.eu
Treasurer
Tord Håkonsen
email: tord.hakonsen@aniridia.eu
Secretary
Elena Tsoneva
email: elena.tsoneva@aniridia.eu
Member
Galina Gening
email: galina.gening@aniridia.eu
phone: +46707906574
Member
Katie Atkinson
email: katie.atkinson@aniridia.eu
Member
Ivana Kildsgaard
email: ivana.kildsgaard@aniridia.eu
Member
Sébastien Montahuc
email:
Member
Oana Maria Simerea
email:
Other organs of the federation
Nominating Committee
James Buller, UK , (chairperson)
Corrado Teofili, Italy
Asbjørn Akerlie, Norway
Sunniva Ørstenvik, Norway
Auditor
Arvid Meløy, Norway
Past Trustees
- Trustees 2022-2024
- Trustees 2020-2022
- Trustees 2018-2020
- Trustees 2016-2018
- Trustees 2014-2016
- Trustees 2012-2014
Volunteers
Aniridia Europe is a large community and many people collaborate as volunteers with its Trustees.
Relationships with the Norwegian Authorities and institutional issues
Asbjørn Akerlie, Norway
Neven Milivojevic, Sweden
Sølvi Ørstenvik, Norway
Participation to ERN-EYE (European Reference Network on rare eye diseases)
Oana Simerea, Romania
Participation to research and social projects
Matteo Castelnuovo, Italy
Tove Hauge, Norway
Gaëlle Jouanjan, France
Lucia Mosquera, Spain
Sølvi Ørstenvik, Norway
Alexandra Sarpakis, France
Rosa Sánchez de Vega, Spain
Veronica Tartaglia, Italy
Corrado Teofili, Italy
Denice Toews, Germany
Website
Silvia Cappelletto, Italy
Espen Vangsnes, Norway
Digital team
Matteo Castelnuovo, Italy
Irma Byle, Lithuania