News
Aniridia’s Perspectives 2024 and the Italian narrative medicine approach: news from Italy
2024 was a special year for Aniridia Italy, full of emotions and successes. In April, the association reached the record number of registrations, including new patients, families and supporters. In May, then, thanks to the annual fundraising campaign, carried out in...
A determined and constant support to patients: news from Germany
The Executive Board met regularly in online meetings. Active exchanges between our members in our Signal exchange group, in which 135 of our 170 members currently supported each other in a safe space away from social media. We have created an overview of which...
Making us visible: a longstanding committment of Aniridia Spain
Spanish Aniridia Association annual meetingOn 22 April, Spanish families and young people living with aniridia met for the 2024 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community....
Wildlife and nature, a booster for a strong community: news from Lithuania
In July, the association “AniridijaLT” organized its highly anticipated annual members’ and families’ meeting, which took place in the picturesque setting in a deer park. This event brought together members of the association, their families, and supporters for a day...
A growing and active community: news from France
At the end of 2023, a new French guideline (Protocole National de Diagnostic et de Soins) was published for the Axenfeld Rieger Syndrome. It can be found here.In 2023 and 2024, as well as in the previous years, Gêniris attended many congresses (the congress of the...
Exciting Nordic meeting in sunny Stockholm!
The Nordic Aniridia Meeting 2024 was held in Stockholm from May 31 to June 2, 2024, gathering 27 enthusiastic participants from Sweden, Norway, and Finland. The meeting ran parallel to the European Aniridia Conference (EAC) 2024 and provided a great opportunity for...
Spreading knowledge on aniridia in Russia: the latest news
From October 1st to October 30th, as part of the project "Help me see the world!", 7 expeditions were made by a pool of doctors (an ophthalmologist, a neurologist, a geneticist, a low vision specialist, and a psychologist) in different regions of Russia (Alaty, Nizhny...
Minutes from the General Assembly, July 8th, 2024
GENERAL ASSEMBLY July 8th, 2024, 5 p.m. CEST, Teleconference Minutes 1. Commencement of the General Assembly The meeting was opened at 17.00 CEST by Barbara Poli. There were the following participants: Name CountryDidier Colle BelgiumOgnian Petkov BulgariaElena...
Aniridia Europe participated to a webinar organised by the Dr Shroff’s Charity Eye Hospital of New Delhi, India
On 19th July 2024 Aniridia Europe was invited to participate to the webinar “Hope for Rare Eye Diseases” organised by the team of the SCEH (Dr Shroff's Charity Eye Hospital) in New Delhi, India, as a CURED initiative. CURED is the Centre for Unknown and Rare Eye...
Recordings of the 7th European Aniridia Conference 2024 available!
The aniridia community enjoyed a great week end in Stockholm (Sweden) from Friday 31 May to Sunday 2 June 2024, when the 7th European Aniridia Conference took place. Once more, researchers and clinicians presented their latest studies on aniridia to the large audience...