At the end of 2023, a new French guideline (Protocole National de Diagnostic et de Soins) was published for the Axenfeld Rieger Syndrome. It can be found here.
In 2023 and 2024, as well as in the previous years, Gêniris attended many congresses (the congress of the French Society of Ophthalmology in Paris, the congress of the French Paediatric Society in Marseille, and many more). Our aim is to get stands to explain what aniridia and the associated syndromes are.
We meet there professionals and students to introduce them to the symptoms, the level of knowledge and research on aniridia. We communicate also about French and European Aniridia associations, about French and European rare diseases organizations and European projects.
Finally, Gêniris welcomes 19 new members of which 4 young babies’ mothers or fathers.