Spanish Aniridia Association annual meeting
On 22 April, Spanish families and young people living with aniridia met for the 2024 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community. Attendees participated in workshops, panel discussions, and interactive sessions, covering topics such as research advancements and strategies for improving everyday life with aniridia. The event also included a dedicated space for families and young individuals, promoting support and fellowship.
Moreover, the attendees were able to learn more about pachymetry and have it performed in situ by Dr. Santiago López. They also received legal information to keep up to date with the latest developments in Spanish legislation on disability and dependency.
Simultaneously, the younger participants enjoyed age-appropriate activities, fostering a sense of camaraderie and understanding.
The Spanish Association of Aniridia at the Spanish Ophthalmology Congress in Seville
The Spanish Aniridia Association (AEA) attended the 99th Congress of the Spanish Society of Ophthalmology, which was held in Seville. This event, that brings together leading experts in ophthalmology from all over the country, provided the association a unique opportunity to disseminate updated information on aniridia.
The association had a stand at the congress, where it was able to provide information about aniridia and its associated pathologies and raise funds.
In addition, on Friday 29 September, the AEA offered a session on aniridia and low vision for residents and young ophthalmologists. This presentation focused on the importance of a multidisciplinary approach to the management of aniridia and the comprehensive care of patients with this condition.
We are not invisible, we have low vision: school workshops
Since 2020, the AEA is holding workshops in different schools presenting Low Vision and Aniridia to kids. The children do role plays and watch explaining videos, so they understand what the visual impairment is.
In the past months, the association has been able to give talks to more than 200 students all over Spain and to distribute copies of Aniridia-Net’s latest comic book to schools for their libraries.
