Organizers: Russian Aniridia Patient Support Society “Interregional Support center for patients with Aniridia “Iris””
Support is provided by:
- Russian Interregional Orphan Disease Society (www.spiporz.ru)
- Medical Center «Childhood city” (www.mcgd.ru)
Target audience: Scientists and doctors working with aniridia, pediatric ophthalmologists, doctors, teachers and psychologists working in kindergartens and schools with visually impaired children, associations for blind and visually impaired people, families of patients with aniridia, psychologists working with visually impaired patients, patients with aniridia and their families.
Main subjects
- Genetic, surgical, pediatric aspects of congenital aniridia, secondary glaucoma, aniridia fibrosis syndrome and aniridia keratopathy. Modern achievements, sharing knowledge and experience about congenital aniridia treatment
- Dialogue between patients and doctors about problems of congenital aniridia
- Communication of congenital aniridia patients and their families
Speakers
- Leading Russian, American, European,Canadian scientists and doctors working in the field of aniridia
- Patients with aniridia and their families
- Aniridia patient support society chiefs from various countries
Plan of conference
2/07/2015 (18:00-20:00) – The first Congress of Russian Aniridia Patient Support Society “Interregional Support center for patients with
Aniridia “Iris””
3/07/2015(9:00-18:30) – presentation of doctors, scientists and others.
2/07/2015 (9:00-18:15) – Charity diagnostic screening for aniridia patients would be accomplished on the premises of diagnostic unit of
Medical Center «Childhood city” (www.mcgd.ru) in Moscow. Also ophthalmic geneticist consultation would be provided as well as blood
specimen collection for later genetic analysis. Prior online booking for this service is mandatory on www.aniridia.ru.
4/07/2015 (9:00-18:15) – Charity diagnostic screening for aniridia patients would be accomplished on the premises of diagnostic unit of
Medical Center «Childhood city” (www.mcgd.ru) in Moscow. Also ophthalmic geneticist consultation would be provided as well as blood
specimen collection for later genetic analysis. Prior online booking for this service is mandatory on www.aniridia.ru.
4/07/2015 (18:00-20:00)– meeting of the patients with specialist from I-care company for presentation and training how to use I-care.
Place for the Conference (July 3): Russia, Moscow, The Public Chamber of the Russian Federation.
Address: Miusskaya Square, Building 7 /1 (Metro Belarus or Novoslobodskaya)
Hotel for Doctors: Adagio Moscow Paveletskaya , Bakhrushina Str. 11,Zamoskvorechye,115184, Moscow
Contacts: Galina Gening, president of Russian Interregional public organization “Inter-regional support center for patients with aniridia “Iris””. Tel.:+79613430035 , +201001116338 (Viber), e-mails: info@aniridia.ru , galina_ramy@yahoo.com, skype galina_ramy, www.aniridia.ru.
Program of the Conference
Download Program of aniridia conference 2-4 july 2015 in Moscow (PDF)