Aniridia Europe gathers people all over the continent
We want to support people with aniridia in all countries and help them to share information and build useful networks in their own countries and abroad.
What is Aniridia?
Aniridia is a very rare disease and every family affected is often alone to face the diagnosis. Even nationally, there’s often only a small group of individuals. Get to know aniridia.
Aniridia Europe, the federation of European aniridia associations and representatives, has been founded to change this situation. Read our mission objectives.
As of September 2021, the federation includes 13 national associations, as well as support groups and contact persons in 20 other European countries.
Get in touch with someone in your country.
News & Events
Minutes from the General Assembly, July 8th, 2024
GENERAL ASSEMBLY July 8th, 2024, 5 p.m. CEST, Teleconference Minutes 1. Commencement of the General Assembly The meeting was opened at 17.00 CEST by Barbara Poli. There were the following participants: Name CountryDidier Colle BelgiumOgnian Petkov BulgariaElena...
Aniridia Europe participated to a webinar organised by the Dr Shroff’s Charity Eye Hospital of New Delhi, India
On 19th July 2024 Aniridia Europe was invited to participate to the webinar “Hope for Rare Eye Diseases” organised by the team of the SCEH (Dr Shroff's Charity Eye Hospital) in New Delhi, India, as a CURED initiative. CURED is the Centre for Unknown and Rare Eye...
Recordings of the 7th European Aniridia Conference 2024 available!
The aniridia community enjoyed a great week end in Stockholm (Sweden) from Friday 31 May to Sunday 2 June 2024, when the 7th European Aniridia Conference took place. Once more, researchers and clinicians presented their latest studies on aniridia to the large audience...