Aniridia Europe gathers people all over the continent
We want to support people with aniridia in all countries and help them to share information and build useful networks in their own countries and abroad.
What is Aniridia?
Aniridia is a very rare disease and every family affected is often alone to face the diagnosis. Even nationally, there’s often only a small group of individuals. Get to know aniridia.
Aniridia Europe, the federation of European aniridia associations and representatives, has been founded to change this situation. Read our mission objectives.
As of September 2021, the federation includes 13 national associations, as well as support groups and contact persons in 20 other European countries.
Get in touch with someone in your country.
News & Events
Aniridia’s Perspectives 2024 and the Italian narrative medicine approach: news from Italy
2024 was a special year for Aniridia Italy, full of emotions and successes. In April, the association reached the record number of registrations, including new patients, families and supporters. In May, then, thanks to the annual fundraising campaign, carried out in...
A determined and constant support to patients: news from Germany
The Executive Board met regularly in online meetings. Active exchanges between our members in our Signal exchange group, in which 135 of our 170 members currently supported each other in a safe space away from social media. We have created an overview of which...
Making us visible: a longstanding committment of Aniridia Spain
Spanish Aniridia Association annual meetingOn 22 April, Spanish families and young people living with aniridia met for the 2024 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community....